Skip to main content

Caregiver Resources

Reports & Studies


Across the States:
2018 Profile of Long-Term Services and Supports

AUG 28, 2018 | AARP Public Policy Institute | California Data

Published for the past 24 years, Across the States presents comparable state-level and national data from a large number of studies and data sources—including some original analysis not found elsewhere—into a single volume.

Data in the 2018 Profile of Long-Term Services and Supports in California includes:

Projected Population Growth in California, by Age Group, 2015-2050

Projected Diversity of the Population Ages 65+ in California, by Year

California State Profile

Population Characteristics

Private Pay Costs

Medicaid Long Term Services and Supports

Family Caregivers

Home and Community-Based Services

Nursing Facilities


More Than Three-Quarters of Low-Income Older Californian Tenants Are Rent Burdened

AUG 21, 2018 | UCLA Center for Health Policy Research | Fact Sheet

In 2016, more that three-quarters of low-income older Californians whose head of household is age 65 or over are "rent burdened," and more than half are "severely rent burdened." The shortage of affordable housing is a pressing issue in California.


The SCAN Foundation Launches Community for Millennial Caregivers

JUL 11, 2018 | The SCAN Foundation

One in three young people in America provide unpaid care to an adult friend or relative --- while pursuing education and career goals, as well as relationships. Have you thought about what that may be like? Do YOU give a care?

The new campaign called Do YOU give a care? establishes a community for the 10 million Millennials who provide support to older family and friends. Check out the videos, graphics, and social channels for caregivers and allies to share their stories and tips.


The Final Report of the California Task Force on Family Caregiving:
Picking Up the Pace of Change for California's Caregivers

JUL 10, 2018 | California Task Force on Family Caregiving | Full Report

Existing policies in California to support caregivers have not kept pace with changing needs. The recommendations described in this report are intended to bridge the gap between existing policies and the challenges faced by California’s caregivers.


New Advocacy Guide: Oral Health for Older Adults in California

JUN 19, 2018 | Justice in Aging | Oral Health for Older Adults in California

Oral health affects overall health – this is particularly true for older adults. Yet, access to oral health treatment is limited and complicated by factors such as lack of dental coverage, complicated rules, and lack of dental providers. To assist California advocates in connecting their clients with oral health treatment, Justice in Aging has developed an Advocacy Guide. Visit Justice in Aging’s Oral Health page for additional resources and help us celebrate #OralHealthMonth by forwarding this resource to your networks.


Narrowing the Gap on Palliative Care in California

JUN 12, 2018 | California Health Care Foundation | Publication & Interactive Maps

This new update finds dramatic increases in the number of palliative care programs and the number of patients served, and broader availability of programs statewide. Inpatient palliative care capacity for the entire state is now estimated to be sufficient to meet 43% to 66% of need, while community-based capacity is estimated to be sufficient to meet between 33% to 51% of need.


PERSPECTIVES: Accounting for Geographic Variation in Social Security Disability Program Participation

JUN 2018 | Social Security Administration | Study

The Social Security Administration (SSA) has released a new study examining why participation rates in disability programs like Social Security Disability Insurance (SSDI) and Supplemental Security Insurance (SSI) vary based on where people live.

The findings also support previous research by the Center on Budget and Policy Priorities and other experts showing the correlation between health and socioeconomic factors such as wealth and education. People with higher socioeconomic status have better health and longevity outcomes.


Promoting Better Health Beyond Health Care: Report and Case Studies

MAY 2018 | Center for Health Care Strategies (CHCS) | Report | Case Studies

This national analysis, developed by CHCS with support from the Robert Wood Johnson Foundation, explores opportunities to catalyze state multi-sector collaboration to achieve population health goals. It uncovers opportunities for states to empower local communities, facilitate cross-sector learning, support data-sharing, and cultivate leadership. In addition, companion case studies highlight successful cross-agency partnerships in California, Louisiana, Massachusetts, Ohio, and Oregon that provide valuable insights on how state-level, cross-sector collaborations can positively impact health outcomes.


Coordinating Care for Duals Through Cal MediConnect

MAY 9, 2018 | University of California, San Francisco and Berkeley

Coordinating Care for Duals Through Cal MediConnect summarizes how care coordination is implemented, successes with the benefit, and the challenges. It includes eleven recommendations to improve the delivery and effectiveness of care coordination.


US Health Care Spending: Who Pays

APR 6, 2018 | Josh Cothran, Georgia Institute of Technology | California Health Care Foundation (CHCF) | Website

This interactive graphic uses data from the Centers for Medicare & Medicaid Services (CMS) to show national spending trends from 1960 to 2016 for health care by payer.


Report Finds Untreated Tooth Decay is Hidden Epidemic Among Older Adults

MAR 30, 2018 | BusinessWire | Fact Sheet | Full Report

A new report by the Center for Oral Health (COH) found that a significant number of older Californians are plagued by oral health problems despite the fact that dental disease is largely preventable. Data for this report was collected through oral health screenings of 2,372 older adults in California – conducted at 36 skilled nursing homes and 51 community sites that included congregate meal sites, adult day care centers and senior centers.


Mental Health in California: For Too Many, Care Not There

MAR 28, 2018 | California Health Care Foundation, Wendy Holt | Key Findings | Full Report | Quick Reference Guide | Charts | Infographic | Painting a Picture | Blog

Using the most recent data available, Mental Health in California: For Too Many, Care Not There provides an overview of mental health in California: disease prevalence, suicide rates, supply and use of treatment providers, and mental health in the correctional system. The report also highlights available data on quality of care and mental health care spending.


Community-Based Palliative Care

MAR 28, 2018 | California HealthCare Foundation | Community-Based Palliative Care Web Page

This resource center houses materials designed to assist organizations when planning, implementing, or enhancing their CBPC services. There are eight (8) areas to explore:
Key Concepts | Best Practices | Programs | Making the Case | Measures & Outcomes | Tools | Educational Resources | Organizations


2018 Alzheimer's Disease Facts and Figures Report

MAR 20, 2018 | Alzheimer's Association | Report | Infographic | CA Fact Sheet

A Special Report on the Financial and Personal Benefits of Early Diagnosis, located on pages 59-66, is the focus of the Alzheimer's Association's one-time California state budget proposal to improve early detection through a public education campaign in partnership with CDA and the AAAs. This June, the CA Department of Public Health will release its early detection toolkit for primary care providers, developed in collaboration with the 10 California Alzheimer's Disease Centers.


10 Things to Know about Medicaid: Setting the Facts Straight

MAR 12, 2018 | Kaiser Family Foundation | Issue Brief by Robin Rudowitz and Rachel Garfield

Medicaid is the nation’s public health insurance program for people with low income. The Medicaid program covers 1 in 5 low-income Americans, including many with complex and costly needs for care. The vast majority of Medicaid enrollees lack access to other affordable health insurance. Medicaid covers a broad array of health services and limits enrollee out-of-pocket costs. The program is also the principal source of long-term care coverage for Americans. MORE


National Study of Long-Term Care Providers (NSLTCP): Questionnaires, Datasets, and Related Documents

FEB 27, 2108 | Centers for Disease Control and Prevention, National Center for Health Statistics

Reports recently released using 2016 data:

Long-Term Care Providers and Services Users in the United States, Adult Day Services Center Component: National Study of Long-Term Care Providers, 2015 – 2016 Weighted National Estimates and Standard Errors:

Variation in Adult Day Services Center Participant Characteristics, by Center Ownership: United States, 2016, Data Brief #296:

2016 National Study of Long-Term Care Providers Web Tables of State Estimates about Adult Day Services Center Participants:

Percentage distribution of Adult Day Services Center participants by place of residence--National Study of Long-Term Care Providers, United States, 2016:


Alzheimer's Association Issues A Guide to Quality Care from the Perspectives of People Living With Dementia

FEB 2018 | Alzheimer's Association | Guide

In this guide, survey data and interviews from individuals living in the early stage of Alzheimer's or with other dementias are used to describe quality dementia care, explore topic areas relative to the dementia experience and share approaches for care providers.


The Growth of Managed Long-Term Services and Supports Programs: 2017 Update

JAN 29, 2018 | TRUVEN Health Analytics | 2017 Update

Executive Summary | The Growth of Managed Long-Term Services and Supports Programs: 2017 Update | MLTSS Prevalence | Populations Served in MLTSS Programs | State Goals for MLTSS Programs | MLTSS Program Benefits and Exclusions | Functional Assessments in MLTSS | MLTSS Network Adequacy Standards | Conclusion | Appendix A: Description of Existing MLTSS Programs as of August 2017

This report contains information which resulted from Contract No. HHSM-500-2010-00026I, between Mathematica Policy Research, Inc. and the Centers for Medicare & Medicaid Services (CMS), under which project Truven Health Analytics was a subcontractor.


Coverage, Access, and Affordability in California: Key ACA Data 2013-2016

JAN 25, 2018 | California Healthcare Foundation | Data

In 2014, CHCF launched ACA 411, an interactive online tool that provided baseline and trend data to help users track the impace of the Affordable Care Act (ACA) on insurance coverage, access to health care, and affordability in California. As of 2018, CHCF no longer maintains the ACA 411 tool. However, its raw data is now available as an Excel file for download. The file includes approximately 50 indicators around coverage, affordability, and access to care.


Integration of Medicare and Medicaid in California: Provider Perspectives of Cal MediConnect

JAN 2018 | University of California, San Francisco and Berkeley | Research Brief

In 2014, California became one of 13 states to implement a financial and administrative alignment demonstration called the Coordinated Care Initiative (CCI). Data collected for this research brief was built on Phase I results and included 19 additional interviews with provider stakeholders including physician providers, provider groups, CMC plan directors of provider networks, FQHCs, hospitals, management services organizations (MSOs), and LTC providers.